Co-Founder and Director
Saurabh kr. Singh is the founder member of RDIF (Rare Diseases India Foundation) and has actively been championing the cause of Rare Disease patients for over 5 years. Saurabh is married to Richa and they have an 8-year-old son Shaurya with MPS II (Hunter Syndrome).
His efforts in the legal cases have led to treatment funding and support to many patients in the past. The only legal case of his own son with a Rare Disease has gone to the Supreme Court of India for the very first time. Saurabh has worked as a National Coordinator and is a very active member of LSDSS (Lysosomal Storage Disorder Support Society) which was the first national parent’s support group for children with Rare Diseases. He has worked generously to create awareness of Rare Diseases in India. He has added many patients with Rare Diseases in a single platform.
He is the person who has been consistently advocating for Rare Disease Policy to many stakeholders including Union Health Minister, Minister of State for Health and Family Welfare, Members of Parliament, Chief Minister, Urban Development Minister of state and the top Government health officials.
He has done Post Graduation Diploma in Business Administration and has over 14 years of experience of various Multi-National Companies in Telecom, Banking and Insurance Sector. He has worked with Vodafone Idea Ltd, HDFC Bank, MTS (Sistema Shyam Teleservices Ltd.), Reliance Communications, and ICICI Prudential.
Saurabh has passed NCC “C” Certificate and participated in Republic Day Camp in the year 2000. He met with the former Prime Minister Late Atal Bihari Bajpayee during Republic Day Camp’2000. He has been awarded several times on different platforms.