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  • contactus@rdif.org.in

Sib Sankar Chowdhury - Rare Diseases India Foundation

Co-Founder and Director

Sib Sankar is the founder member of RDIF (Rare Diseases India Foundation) and is actively doing advocacy among the state and central Govt for patients with rare diseases for the last 10 years. He is a positive minded person who works with a Private company in Kolkata. He has a son Arian who is suffering from MPS-II. He is sensitive to the needs of kids affected with Rare Diseases in India.
Sib Sankar has also worked as the Secretary of Lysosomal Storage Disorder Support Society (LSDSS), which was the first national parents support group for children with Lysosomal Storage Disorders, with the goal of raising awareness and working for the welfare of the community. He has developed a good relation with other International patient organisations to keep a close watch on the research and development work at an International level. He is very active on social media like Facebook and Twitter. He has represented LSDSS in International MPS Symposium.